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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Thank you Doreen yes I have been anti sickness tablets - ptochlorperazine.
Rose
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Rank: Advanced Member
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Joined: 3/4/2010 Posts: 576
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Oh Rose - the vertigo sounds horrible. Hope it has cleared up and you are infection free. Any ideas now when you can start the Humira?
Comiserations with the tooth. I'm going tomorrow for a tooth that has crumbled .... (Looking for a 'gummy' icon but I can't seem to find one!!) xx AIlsa
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Rank: Advanced Member
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Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Oh Rose, so sorry to hear that you are still on this ridiculous waiting game. You must be feeling very under the weather with the ongoing infection, it can make you so weary after a while. Fingers crossed it gets blasted by this latest batch of anti-bios. Vertigo, I know not a jot about but it sounds horrible, hope the pills work well. Good luck at the dentist. At this rate the blinking Humira will be passed its use by date Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
really feel for you .. i'm in the same boat re infections.
i've just finished my 3rd lot of Anti-Biotics for a chest infection that's hang around since Christmas. now my chest is finally clear i've got a urinary tract infection ( hoping the results from the test will be at GP's this afternoon that indentifies which Anti-Biotics i need yet again to clear this up. i think i've contracted it with all the Anti-Biotics i've been on. have to say the lower pelvic pain this morning is really painful !!
the Vertigo must be awful for you. are you on meds for it..? also hope your tooth has settled down now.
also just to let you know i've got to wait at least another month before i can start on the Humira as i've only been on it five months, you need to be on it 6 months before they consider it a fail !!
so like you i'm playing the waiting game, although i know you have been waiting much longer.
take care,
Suzanne x
PS. i got muddled up here .. meant to say i had only been on Hydroxy for 5 months so not considered a fail yet.
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Ailsa Thank you. No date to start as left with me to ring the nurse now when I am infection free. Good luck for you at the dentist Lynn, Thank you as well. Yes I feel so cheesed off with this ridiculous waiting game it does get you down, you know this more than most of us and I am in no way in the same boat as you, but it is enough to make me feel sorry for myself. Anyway been up an hour only and going to sit in the garden this afternoon as it is beautiful down here in Somerset. A little warmth does 'awaken' me. . . Yes vertigo is dreadul any one that has had it will back me up everything spins. Doc gave me tablets so a bit more settled today.. .. However I have rung in sick today I couldn't go and look at a computer and deal with customers today. Feel bad but since last years bout of sickness I do tell myself I must come first now. This is the 2nd day this month so worked 18 hrs this month and had 12 sick and 6 as a holiday day. A real part timer, Suzanne Thank you. Sorry you are still on antibiotics as well. Urine infections are very painful. I hope it clears up quickly for you. Are you still on mtx then Suzanne ? It is annoying for me as the Humira has been in my fridge over a month and I cannot use it. Next week I am sure ... fingers crossed Rose
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
yes i got muddled up with my last post,
i am still on Methotrexate ( started on that last June ) went up to 20mg. now gone down to 10mg as it wasn't doing anything. then i added Hydroxy to the mix 5 months ago and i have to have been on that 6 months to consider it a fail.
my Rheumy Nurse said i have to stay on both the above for the first 3 months after starting on the Humira .. although i might ask if i can cut out the Methotrexate. i have a 4 month follow up with Consultant next week.
my tests aren't back at GP's yet, apparently it takes 3 days to grow the bacteria to identify which Anti-Biotic to take, but i told the Doctor's Receptionist the pain i was in so she suggested i see my GP, so going at 4.20 this afternoon. not sure if he'll give me anything yet but i would like to discuss with him about being on Anti-Biotics for so long this year. i saw a Locum on Tuesday so didn't ask all the questions i would normally think of with my own GP.
so the results should be back tomorrow, i should think i'll have to wait till then.
it's lovely here too in Buckinghamshire,
nice to go out without a jacket.
hope you are feeling better as the day goes on Rose,
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello All
Just an update from little old me.
Well on Royal Wedding day I had severe throat and glands and also an infection 'down below' ended up going to local Hospital as was passing blood spots. I was put on a course of antibiotics for 3 days and problem 'below' appeared to disappear, although throat and glands disappeared just 4 days ago. However, my problem 'below' decided to re appear on Thursday. So off to my GP (after a telephone consultation - which is ludicrous) to find out why ? Could not tell me, examined me, took swab, and yes you guessed on 800 mg antibiotics again for 7 days.
SO STILL NOT STARTED HUMIRA.
grr grr. I am off to South of France a week on Wed - nice warm weather hopefully so really looking forward to that. Even if I am better before I go it has decided by RA nurse to wait to start Humira until I come back from France.
So that's my date.
Rose x
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Rose You poor thing youve had one thing after another! I think a little holiday in the south of France is just what you need! Have a lovely time and fingers crossed for the Humira.. Lots of luck Ceri xx
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
you sure have been through it with infections.
i mentioned i had a UTI infection a few weeks back and to be honest it's stil not totally cleared up after 3 courses of Anti-Biotics.
the last sample came back as Satisfactory but i don't feel right when i go to the loo still, it's not awful pain just slight discomfort ... so i took another sample in last Thursday to my GP Nurse when i had bloods done and it still showing low trace infection ( but that wasn't enough to show up in the results from the Lab )
so i am going to get these latest results tomorrow and see what's what.
i've started drinking Cranberry juice since Saturday as the Nurse said this has quite a good result rate.
if i don't hear soon about starting on the Humira i am going to contact my Rheumy Nurse this week and tell her the state of play.
i really hope this lot of Anti-Biotics do the trick for you,
Suzanne x
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Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Rose Sorry to hear the latest news, hopefully your holiday will give you the rest and relaxation you need, so that on your return you can get going on the Humira. Have a great holiday Julia x
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Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Rose,
Sorry to hear you are yet again on antibiotics! Hope you have a lovely holiday and come back infection free ready to start the humira.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Oh my Rose! You must be feeling soooo frustrated. I do hope you get everything sorted out. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Thank you all for your support. However my Doc rang this evening to say STOP taking the antibiotics. He had the result from the Hospital to say that I have a Group A strepticocal bug (sorry not the correct spelling) So he has sent to the chemist for me a high hit for 10 days Pencillan tablets. urgh . . feel totally fed up. I hope it clears up within the next 8 days as I cetainly don't need this going away.
Sorry, I will stop moaning 1 day
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Rose,
no wonder you're fed up !!
really hope the extra strong Penicillin kick it into touch and that you can enjoy your Holiday and then start on the Humira when you get back,
take care
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Rose, you know you are allowed to moan on here Lets hope this new course of antibiotics will now do the trick, it looks very promising bearing in mind they have given you this diagnosis. I m sure you will feel much better for your holiday. Take care, Julia x
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On my second day of penicilan. Don't feel particularly well I must say but I have gone to work this week(albeit I have 6 of my 12 hrs)
Not sure if I should be working with this sort of infection actually. Amoxicillan dose is 1500 mg per day. Which I know is high.
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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I m sure really Rose you shouldn t be at work with how you are just now, but with RA I think it makes us pretty tough cookies and we try to do as much as we can just to try and lead a half normal life. Hope you feel bit better tomorrow.
Julia x
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Rank: Advanced Member
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Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Oh Rose, I really feel for you. Amoxycillin always works well for me and usually kicks in pretty quickly so I hope it is doing likewise for you. Perhaps work really isn't the best place to be in the circumstances, especially with a lowered immune system to start with. Hope you are feeling fully recovered by the time you set off for France Take care Lyn xx PS That is a high dose!
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Thank you all. Off to bed now so hopefully tomorrow will be a better day
Rose x
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Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hope your feeling better today Rose, look after yourself and take some time off work if needs be.. You want to feel better for France! xx
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